Friday, August 17, 2012

Update from Gulf Shores, AL

We hit the beach this week.

Sort of bad timing because we are missing orientation and meet the teacher for Bodie and Jax. I can say that it is MUCH needed for everyone so I don't feel so guilty.

We arrived on Sunday after an over night drive and stop at a hotel. McKenna wouldn't sleep in her pack n play so her and Barrett ending up sleeping in the car :o(

The kids have spent lots of time at the beach and tonight we are going to try fishing again after McKenna goes down.

It has rained off/on but the weather has been great for the most part. I haven't hit the beach because it is just too hot for me.

Medically:

Still taking 5 chemo pills a day.

Weaning off the steroids (yeah!!!!) slowly and has been going well so far. Right now I look like a man-eating cabbage patch kid from the water retention caused by the steroids. I hate looking in the mirror. Hopefully by the time I go back to the doctor on Tuesday things are still going well and I can stop taking them all together. Then the doctor said it will take about 4 weeks to get them out of my system and the swelling to subside.

They added another chemo drug to the regimen at my last appointment but starting it was delayed while my oncologost had to get approval from the insurance company.

I am going to get on the treadmill on Sunday - wish me luck!

And looking into water aerobics classes. Don't make fun! Water resistance is the easiest thing on my body.

All and all things are going well and everyone remains optimistic.